Each week, CNN profiles someone who has faced a dramatic turning point in their well-being. Do you have a story to share? Go to CNN iReport to share it, and you could be featured here.
See more stories like this and share your own on CNN.com/TurningPoints
Story highlights
Tharon Drake is a 22-year-old swimmer competing in the upcoming Paralympic world championship
Drake is totally blind without light perception and lives with hemiplegic migraine headaches
Drake navigates the pool with the assistance of a "tapper" and by brushing up against lane ropes
At the age of 15, Tharon Drake’s world was submerged into complete darkness.
It all started after a routine swim meet in February 2008. It was late, about 11 p.m., and Tharon began to notice his vision wasn’t quite right. He and his dad, Shawn Drake, wrote it off as post-race exhaustion and went to bed.
But the next morning, Tharon’s dad was worried. “I was in panic mode. Something was definitely wrong,” Shawn recalled. His son’s vision was darkened and blurry, and Tharon could barely see a few feet in front of him, Shawn said.
Tharon’s family immediately sought medical help. No stranger to doctors, Tharon had been dealing with severe bouts of amnesia for a few months prior, and hemiplegic migraine headaches, which can be so excruciating that the pain spreads to extremities and other parts of his body.
His diagnosis was unclear. Doctors attributed the amnesia to a rare methylation defect, which refers to problems with the body’s natural mechanism of gene expression, but they couldn’t explain the sudden blindness. One doctor surmised it was the result of a viral attack, according to Tharon’s dad.
Treatment began, with the goal of building up Tharon’s immune system. The amnesia started to disappear, but week by week Tharon also lost more and more of his eyesight. By June 2008 he was totally blind, without any perception of light.
Normal vision at age 14, blind at 15
“It was tough. One year I had 100% vision…the next year I was 100% blind,” Tharon said. To this day, the cause of Tharon’s blindness remains a medical mystery.
But losing his sight didn’t get in the way of Tharon’s life vision and purpose. A competitive swimmer since age 9, Tharon continued to push through daily swim practices with the encouragement of his father, who helped Tharon learn how to swim all over again. In high school Tharon competed against sighted swimmers. Today, he races against other blind swimmers in his para-swimming class – S11, which indicates “a complete or nearly complete loss of sight.”
“Parents need not allow their child to become a victim,” said Tharon’s dad. “I used to be the one pushing Tharon. Now he’s the one pushing himself.”
Tharon also refused to let his blindness become the center of his life. “Everyone has a disability. Mine just happens to be blindness,” Tharon said. “But you can’t let your disability define you. …It’s just part of your story.”
Tharon said blindness fundamentally changed how he interacted with the world around him.
“After I lost my sight, it wasn’t that my hearing got better, it’s that I learned how to pay attention to my other four senses.”
How blind swimmers navigate a pool
Blind swimmers race with the help of a “tapper,” a person who uses a custom tool to tap the swimmer on the head when they’re nearing the wall at the end of the lane. All swimmers in the S11 class are also required to wear blackout goggles to equalize the playing field, as some swimmers may have light perception while others are totally blind.
At first, Tharon’s tapper used his walking cane with a foam pool noodle fastened to the end to remind Tharon to make his flip turn. After several prototypes, an extendable light bulb changer does the job today. Tharon has experimented with several different tapping devices, one of which included a fly fishing rod.
To remain within their lane, blind swimmers brush up against the lane rope and correct their stroke when they sense they’re veering. Tharon said he has a new plan for increasing his swim speed: to swim without using the lane rope as a guide. In fact, the young swimmer said he’s already managed to do so in recent races.
On the horizon
“Tharon is a better swimmer blind than he was sighted,” his dad said. In fact, Tharon’s times actually improved for every one of his strokes after he lost his sight. His father attributes this to Tharon’s competitive nature and optimism. “He’s the most competitive guy in the pool. But once he’s on deck, he’s the friendliest guy you’ll meet.” Tharon credits his successful comeback to his family, friends, girlfriend and faith in God.
Today, Tharon Drake aspires to become the world’s best Paralympic swimmer.
He’s currently the U.S. record holder in 12 swimming events in his class and has qualified for the 2015 IPC (International Paralympic Committee) Swimming World Championships in Scotland. Currently he is No.2 in the world in the 100-meter breaststroke, but he’s hoping to grab the top spot in July when he competes against China’s Yang Bozun, the current world record holder.
Related: Watch the 2015 Paralympic Swimming World Championships here live July 13-19
Tharon also has the Rio 2016 Paralympic games in his sight. To qualify, he’ll have to earn a place on the team later this year – but unlike the Olympics, which requires athletes to place nationally, the Paralympics operates on an international scale.
“I didn’t get here alone,” said Tharon, who reads books to children at a nearby school for the blind. He also plays more than 10 instruments and inspires others as a motivational speaker.
“My family and friends encouraged me with love and support. If everyone could learn to love each other like this … we would conquer so much more than blindness.”
You can follow Tharon Drake on Twitter, Facebook, and Instagram.